Bob’s Lyme Disease Diary & Comments

Saturday, June 2, 2007

June 3, 2007 · 1 Comment

6:00 A.M. waked up and had a cup of coffee, with no irritation.  Took my medicine, of course.  By the grace of God and the help of my wife and my computer, I haven’t missed a dose yet! For me, that’s a record.

Had breakfast of sausage and eggs, toast and green tea at 8:30 A.M., followed with prayer time.

9:30 A.M. my friend Gene called again, with more instruction and help….another four hours on the phone, but quite profitable and enjoyable, even though he’d pick at me for being a Marine, and I’d pick back at him for being a Soldier.  We had a nice time and got some work done that wasn’t part of my anticipated schedule today. It was worthwhile, though, and I am thankful for the help.

Lunch a little after 1:00P.M.  My wife made a nice one pot dish of baked round steak with tomatoes, potatoes, onions, carrots and maybe something else.  It was gooood!

Today I am having almost no irritation, no lethargy, dizziness or other lyme symptoms.  I feel O.K., but not great.

Did a little clean up in my office area this afternoon.  Was going to go for a walk,  but it started raining, so I stayed inside and did my back exercises.  That helped a it lot.

6:00 P.M.  Getting some burning in my throat and upper part of my esophagus.  Ate a rolaids tablet.

7:00 P.M. My wife did it again…called me to a beautiful supper of baked chicken legs, rice and a slad with lettuce and peaches.  Good stuff! 

Finished the day with a quiet evening and then to bed around 10.

Lyme disease didn’t diminish this day but just a little with some burining in my chest.

Categories: Lyme Disease Diary

1 response so far ↓

  • Pam Mitchell // June 5, 2007 at 8:26 am

    After 18 years of this dreaded disease I find the two years of IV therapy to have been quite helpful, but as they lower the doses of IV Rocephin, IV Zithomycin and IV Flagyl the symptoms of brain fog and Fatigue start coming back. The INH for Clamydial Pneumonia has kept the Babesia WA1 sweats at bay. A herpes pannel done several weeks ago show epstein bar off the charts as well as a high CMV and two other herpes. Doctor gave me the results and wondered how I was up and around. Want me to start on a very expensive drug called Valganciclovir. $2000.00 a month. I read the reports and to get the viral load down I should be on this for 6 months. Like Tri-care will cover that huh? I came back to me in the last two years and don’t want to back to La La land. It took me so long to find out my problem and now my Lyme Clinic is shutting it’s doors in July. Talk about a bummer huh. I, however, thank God that I have had two good years with loss of brain fog, dizzy spells, eye floaters to obstructed right eye. I thought the ruptured brain aneurysm I suffered in 1999 was a snap compared to this Chronic Inflamatory Immune Deficiency. Anyone out there that has a suggestion? God Speed and Good Health to All. Thank you for all the Lyme Literate health care managers that give us their all! Also Labs like IGENEX that help to give us a chance.

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